I was born with what they call Spina Bifida Myelomeningocele. WOW long words, right? Well, spina bifida is a birth defect that effects the spine, nerves and sometimes the brain. Luckily mine didn’t effect my learning and communication skills. When I was born the doctors didn’t know too much about Spina Bifida they just knew ways to kind of treat the fatal things that could happen to the baby after birth like being born with hydrocephalus aka “a water head baby”. They also knew to close up the spine and correct any deformities. What they didn’t know is how much independence one can have with Spina Bifida. The doctors told my mom I would be a living vegetable and that I would have to have everyone do simple tasks for me on a daily basis like bathing, clothing, eating and drinking. They also said there would be a 50% chance that I would be independent. They told my mom and dad I would be a burden and just to abort me. My mom didn’t care though she went through with the pregnancy despite what the doctors had told her.
Looking back now when I was younger anxiety and depression was no stranger to me. I would obsess over why someone would bully me or even wonder what it would be like without a disability. I would sit and watch the other kids as they ran, climbed, jumped and skipped at recess. From time to time I would get depressed and doubt myself and feel like I would have been better if I wasn’t born with this disability.
Growing up for me everything wasn’t always sunshine and rainbows. When I was 3 years old my mom and dad split up and my mom was addicted to drugs. After my mom and dad broke up I never got to see him again she met a man that she was with for 9 years who would abuse me and her, but when I was 7 years old all of that changed for the better.